eating disorders

A Discussion About Rule 62

An open letter to men in recovery: stop using “Rule 62” to dismiss women, comorbidity and intersectionality.

To ring in 2020, I spent New Year’s Eve with my friends who are sober–most if not all of whom are qualifying members of Alcoholics Anonymous (I am not; however, I understand the fellowship and framework quite well).

I was discussing sobriety with a man I had just met upon walking in the door to my good friends’ house on the water on the south shore of Long Island–the designated gathering place for 50+ sober people at any given time on a holiday such as July 4th, MDW, and this year, NYE.

I mentioned the unfortunate lack of consideration for folks with eating disorders like myself in the program of AA–especially considering that so many women (approximately 50%) experience comorbid symptoms of eating disorders and substance abuse including alcoholism.

The man in question simply said, “Rule 62,” and looked at me blankly.

Rule 62. 

Don’t take yourself so damn seriously. 

Rule 62, for those unfamiliar, is a rule that has found its way into recovery circles as unspoken tradition.

The backstory, from what I understand, has to do with tradition four (“Each group should be autonomous except in matters affecting other groups or A.A./E.D.A/whateverA as a whole.”) in anonymous programs, which discusses the  idea that individual meeting groups can operate on their own volition without involving or compromising the integrity of the fellowship as a whole.

When AA was expanding, a group attempted to be “all things to all people”–they resolved to take care of meetings, residential treatment, and other facets of recovery life all under one roof–and realized that their goal was way bigger than they could manage in the context of the AA program.

This group came up with 61 rules and sent them to AA as a manifesto or proclamation for beginning their ambitious program. Then, they realized just how daunting a task it would be to take care of every single person’s needs in the realm of addiction treatment–and before scrapping the idea, they came up with rule 62. 

So, what about it? 

Last week, I read a really powerful and thought-provoking opinion piece in the New York Times about the patriarchal foundations and history of AA as an organization. We all know the names Bill W. and Dr. Bob, two men who were alive during the first world war and became alcoholics due to a perceived spiritual malady that they believed had to do with an inflated ego and sense of self, as well as a lack of presence of a higher power in their lives. They were their own higher power for the duration of their relationship with alcohol and drinking–which, as the NYT article suggests, is the essence of white male privilege. 

They sought to recover from this sense of ego, but did it also heal their harmfully separatist sense of rigid gender roles and toxic masculinity?

Alcoholics Anonymous itself has, seemingly ironically tried to be all things to all people; opening itself to women, people of color, people with doctorates, average folks, and everyone in-between, but how can it do that if it still holds itself in the principles, practices and ideas of a world that was designed by and for white men? How can a fellowship with such a marginal number of women attending compared to men even say that “anyone can do it” if they have the capacity to be honest? 

The problem is, this claim is dishonest in and of itself.

Rule 62 was meant to be an ego-check on a group of alcoholics who thought (mistakenly) that their individual group’s program could be a one-stop shop for recovery. When they failed, they wrote this rule as a way of softening the ways that their ambitious and admirable mission had not gone to plan. Well intentioned? Maybe.

In this conversation in my friend’s kitchen, Rule 62 was used to dismiss my very real concern about the harm still being done to people like me in the rooms who are not having their eating disorders addressed–a problem backed by statistics, as I shared before.

I know, I know. If AA were to take on eating disorders too, they wouldn’t really be AA anymore. But this is 2020; and we really need to start accounting for the more than half of the fellowship that needs access to a safe place to express the comorbidity of their alcoholism with other issues like disordered eating and, in the case of my region, opioid abuse. By not being sensitive to issues that clearly and empirically intersect with the problem of alcoholism, there is an imminent danger of making full recovery inaccessible to so many members and potential members.

“At least you’re not drinking” (I hear this one a lot, too!) isn’t good enough anymore. Eating disorders have an unbelievably high mortality rate, especially anorexia nervosa. And I’d venture to say that MOST eating disordered alcoholics can relate to the feeling that alcohol sets off their ED, and vice versa. This is serious.

Food is available at tons of AA meetings without supporting the people for whom food might be a trigger. With over 50 percent of addicts and alcoholics also having an ED–it seems a little insensitive not to address this, and to tell those who are authentically worried about it “not to take themselves so damn seriously.” 

It’s not really a coincidence or an accident that this “rule” is probably most often bestowed upon women, as it was done unto me.

Having an ego and unwarrantedly flaunting your ability to quote a book that is, dare I say, just as fallible and subjective as we all are is…confusing, and honestly, a form of gaslighting imo.

Women don’t need to be powerless, and we don’t need to be told not to take ourselves so seriously. The world outside of those church basements and sober gatherings already does that to and for us. 

Now, I know that this individual’s use and interpretation of Rule 62–like the fallible interpretations of a lot of things in AA and other anonymous groups–speak to the person, not to the fellowship as a whole, hence, the fourth tradition. Hell, Rule 62 was created so that a bunch of people who created a plan and failed, like any human might do, could laugh at themselves and not be bummed that they hadn’t succeeded. We all need a little of that in our lives, certainly.

But I wonder how many times this rule has also been used to drive women into silence about the things that bother them about the world that they live in; things happening inside and outside the rooms. Because the fact is, we absolutely need more power in the world at large and in the daily context of our lives, not less.

And that’s not going to come to us when we are told that the realities of the things we face–pay gaps, the motherhood tax, harassment, assault, violence, dismissal, diet culture, body shame, objectification, legislation made against and about our bodies, repeated interpersonal abuse and marginalization–aren’t serious, problematic or important enough for the men who claim to be united in recovery with us (while, might I add, segregating themselves OFTEN) to take seriously.

I’m a member of a recovery fellowship that isn’t AA, but since AA laid that foundation, I’m addressing it directly, I guess. Any if not all of my closest friends are members of AA. Some of them may cheer me on for saying this, and some might not. That’s okay. However, if anonymous recovery groups, and recovery as a whole, isn’t the same boys club that it says it “used” to be, I’m going to need some of the recovering men I see, know, and love, to start proving that. In fact, I demand it, because (gasp!) I take myself seriously. Out of nothing more than self-respect.

 

eating disorders

Are you Addicted Enough?

Most people would look at this post and go, what? But as always, just wait to see what I mean.

Most people (maybe not most, but a lot) of people I’ve ever heard talk about addiction talk about having the disease of “more.”

On a walk this afternoon, 65 hours after my last binge, I realized that I have the disease of enough. 

I used to ask myself,

Am I good/worth enough?

Do I belong enough?

Is there enough food for me? 

How can I become small enough? 

Did I burn off enough? 

My family used to comment that I would “eat like I was going to the electric chair” and tell me to “take human bites.” These comments didn’t help me, in fact, they probably made me internalize a lot of the mentality that I was “broken.”

Realistically, now I know that there is a glitch in my brain that falsely tells me that there is not enough food and that I better eat as much as I possibly can so that I get enough. This comes from dieting and starving beginning at age twelve; I built myself a deprivation mechanism that fossilized itself into my brain so hard, that when large quantities of food are present, my brain thinks its the last time I’ll ever eat again.

3398599_0.jpg

The reasons why I binged on thanksgiving this year are many. For one thing, I disassociated pretty bad when I got to the table, as if it were just me and the plate. I took a three hour nap after my meal and still felt sick. I wasn’t proud at all.

To my surprise, I woke up the next morning and felt SUPER charged with the energy to recover and do better. I don’t know where it came from; I think maybe I just knew that I didn’t want to feel the way I felt the night before…disgusted, alone, defeated and depressed. 

I went to a meeting with my cousin, and another one later that evening, and another one last night where I shared in front of a room full of 50+ people that I needed support. I asked myself two questions on paper last night, “How do I get better at asking for help?” and “How do I make g-d everything?” and I think that meetings and support systems will reveal the answers to those questions as I go forward.

And I’ve come to the conclusion that staying sober is pretty easy on me but, if I’m in active eating disordered behavior, that becomes a thousand percent false.

I never drank problematically until about a year ago, when I spent a month drinking at the same bar. During that time, I learned how connected my eating disorder and my problem of drinking were. My body image issues were the primary problem, but I learned quickly that if I drank, I no longer was conscious of what I looked like and I couldn’t really coherently think about what other people thought of me–or what I thought of myself. 

Even after I stopped drinking alcohol, I was so judgmental (one of my go-to defects). Today, I realized that this was how I behaved because I saw people the same way that I assumed they saw me, which was how I also saw myself–worthless, inferior, undeserving. And I kept blaming the internalized voices of my abusers for these projections, when realistically, it was a way of keeping up self will. Those voices that emotionally manipulated me down to nothing started as the voices of other people, and then started to sound a lot like me.

I blamed my higher power for that for so long, even though it wasn’t her fault. I couldn’t trust a higher power because what had g-d ever done for me, anyway? I had to control my life. I had to protect myself. I had to find ways to survive abusive people. I had to successfully hide my identity from my family. I had to save the world and still make it home in time for dinner. All the stability in my life has always depended on ME. How was staying sober or free of self harm or away from disordered eating any different?

Those messages I received as a kid that I was small or unimportant came from people who chose their own form of self-will over unconditional love. And it gave me a model for allowing my own forms of self-will to run my life into the ground, on and off for the past (almost) 12 years.

And to think I kept this up until it attacked me head on this past week. 

I binged because my higher power wasn’t invited to the table with me where I sat and ate for almost 10 minutes in virtual silence. I didn’t give a power greater than myself a chance to protect me, and that’s on me. I was busy making sure I had enough, belonged enough, felt like enough–when in reality, I was born enough.

 


 

48 hours

Stare at your plate

eat, take more

eat, take more

until you can’t 

take anymore

you remember 

this time last year

you were well 

because you invited god

to your table

where is your god now

and why did you make her small?

because it’s all you know 

how to do

shrink yourself,

to feel like your life 

is your own 

except god didn’t have to

get smaller with you 

it’s not god’s fault 

the same way it wasn’t 

your fault

when they chose self will

over unconditional love

so you sit here 

and stare at the plate 

taking more,

promising you’ll make up for it tomorrow,

hollow yourself out 

until your body is screaming,

you’ll keep choosing self-will 

over unconditional love

and you can’t hear your body

screaming

“We are both so much more

than enough.”

eating disorders

Sober and In love in Buffalo

Love shows up in the most unlikely places.

Seriously, who would have thought a city that is so famous for its crazy, double-digit inches winter snowstorms could be so full of magic?

One thing I never knew about the beautiful city of Buffalo was that it is an absolutely incredible place in the summer. 

My girlfriend and I went for her sorority sister’s wedding last week, and we made a little vacation out of it. I fell in love with the city, I learned so many new things about my relationship and myself, and I fell in love–with her. 

IMG_3855.jpg

We spent the first night wandering around the canal side of town, and came across some really cool stuff–a shark girl art piece, boardwalk trivia night, and a few characters from around the city. 

Also–THE FOOD! Beef on weck, pretty good pizza (coming from a native metro-New Yorker), Buffalo wings, stuffed banana peppers, HUGE burgers, and every ten feet, a bar with their own brewery or a brewery close by that makes all their own beer. Of course, I did not partake in the drinking for obvious reasons (sobriety).

The day after we arrived, we hiked the Buffalo River through all the old grain silos and down past the canal side where we were on our first night in the city. It was easily one of the most calming, beautiful, and spiritually energizing things I’ve ever done. If you’re ever in Buffalo, go see Silo City–it’s unreal, and perfectly legal to tour–unlike almost all other abandoned sites you’ll find anywhere.

IMG_3873.jpg

We came back to Silo City, this time for a vertical tour–yep, that’s right. My fat ass went up 11 floors of 110 year old spiral staircase, down more metal staircases, up a ladder, across an air bridge, and through three different grain silos that were built during or before 1930. I’ve urban explored since I was 15, but never with a group of strangers and most certainly never that high up.

And even though my fear of heights is like, OVERWHELMING, I still wasn’t as afraid of falling more than 14 stories as I was of maintaining my recovery while on this trip.

I realized that my fear wasn’t because I was angry at my girlfriend, or angry at anyone else–it was because I was in a physical and emotional space where it became really, really hard to keep my sobriety while being surrounded by so much celebration and so much actual alcohol and food all at once. And for me, staying sober is necessary to keep my ED recovery, too. I was in sensory overload, for sure.

IMG_3987.jpg

So how did I do it?

Connection.

We had spent the day walking around, we toured the Martin House, originally designed by Frank Lloyd Wright, and went to see the Hotel Henry, on the former site of the Buffalo State Psych Center.

I started getting really restless, irritable and discontent--which is what happens when you’re in your ego, far from prayer, and thinking only of yourself and your small problems.

My friend from home (shout out to Ryan) urged me with GIFs to go to this LGBTQ AA meeting ten minutes from our hotel room. I was able to ask my girlfriend to drop me off and get me there, and I’m so grateful I did.

 

IMG_4050.jpg

An aside–Buffalo has an INCREDIBLEEEEEEE LGBTQ+ community.

The speaker spoke so much truth into my story. The perfectionism, the comparison, the feeling out of place. More and more people told my story and I realized that it was my higher power speaking through the people in this meeting, whom I would likely not see again.

I got their numbers anyway, and one of them was the reason I figured out why I was being such a brat–because I was so scared of losing everything I’ve been working for in recovery from my eating disorder and beyond.

They got me through the rehearsal dinner, where I wanted to cry because we sat three feet from the open bar. 

They got me through the rest of the night following the rehearsal dinner, when I finally opened up to my girlfriend about why I was being so mean and that I felt so scared. We compromised and and she thanked me for my realness. Relief.

Communication

…is something I’m notoriously terrible at. But Cait (yes, she and I have the same name…it’s….a thing) makes me so good at it. It’s easy to articulate things when someone wants to listen and grow with you and understand, even if they know they might not ever understand. 

The more we communicated, the more we were able to draw solutions out of the next twenty four hours.

IMG_3886.jpg

She stayed for the wedding after party and I went back to our hotel room alone. I asked for what I needed, and it began with that meeting at the end of our trip. I set boundaries like I never have with another person before.

My fellows and my girlfriend weren’t the only ones I was in frequent communication with. My higher power was there this whole time, and I think that kayaking trip was when I felt it most. I was in my own head every second of that trip before the miracle of a meeting I went to, except when I was out on the water paddling through the wind like a champ.

Commitment

Maybe the feeling of “so in love” was a symptom of wedding fever; maybe not…who knows. Seeing all the dancing and the staring into each other’s eyes intently and the speeches and the love and the crying was enough to make me look at my own love and see nothing but perfectness.

Even in the face of imperfection. 

My girlfriend thought the ceremony was a half hour later than it actually was, so of course, we missed it. IMMEDIATELY she started to cry once she realized. I tried to preach acceptance as best as I could, and let her have a good time, dance a little, talk a little, reassure a little, get grounded a little.

Typically, I am a dancing MACHINE at weddings. But as I said, this wedding had me particularly anxious and vulnerable. So I didn’t leave my seat much, except for (obviously) the Cha Cha Slide. 

Then, our song came on. (“Perfect” by Ed Sheeran).

 

IMG_4025 2.jpg

 

We were the only slow dancing queer couple on the floor, and the self-consciousness set in REAL hard. But I looked at her and sang the words and stopped caring. And I loved every second of it.

For three minutes, I was committed to being myself. I was committed to love and to not caring what other people thought. 

And that instance made me realize that I’m committed to loving this person as much as they love me.

And that means being honest with them, even if I have to lay out that honesty while being an angsty, frustrated and resentful mf. 

I loved Buffalo. I love being in love. I love my recovery. And I wouldn’t trade any of my life for anything (except maybe I’d move to Buffalo).

 

IMG_3938 2.jpg

 

xo

 

eating disorders

Demi Lovato’s Invisible Illness

So I know I just wrote a really important post like…four days ago. But churning out stuff on this blog has become my default coping mechanism lately.

I have seen and taken in a lot of information today. This past weekend, I watched a documentary on the life of Jim Morrison, lead singer of the Doors, who died of a heroin-induced heart attack at age 27. 

This morning, I was listening to his posthumously released spoken-word album An American Prayer, to the track “Curses, Invocations” — he ends the poem with the verse, “I will always be a word man…it’s better than a bird man.”

Words are healers for so many of us.

But I digress. This is all somewhat connected, I promise. I was walking through NYC this morning and afternoon, listening to people on the train, finding myself in resentments toward people I didn’t know, and frustrated at how rude people can be, especially on mass transit. Sweating, trying to get to an interview on time, and noticing people struggling and thinking about all the assumptions we make about others dawned on me a lot as I walked through Manhattan trying to find where I needed to be.

When I got home, my brother called me and told me to Google Demi Lovato’s name, and that she had been hospitalized for a heroin overdose just hours ago.

Like I said, I know it’s only hours-old news, and I was already in your feeds just days ago. But writing about this, news that shook me really hard, is the way I’m going to process it all right now. Bare with me, please. 

The first thing I did when I read the article about Demi’s overdose was text my friend Lexie to ask if she’d heard. A conversation ensued.

A while ago, we’d both shared our frustrations over a Twitter storm she was involved in about pulling a ‘prank’ on her bodyguard that involved being touched nonconsensually. 

I pretty much at that moment decided that Demi, in my eyes, was cancelled. I was really upset that a person who was such a fundamental part of my recovery would do something like that and shrug it off so thoughtlessly.

I didn’t take the time to think about the invisible struggles that people are often going through when they lack self-awareness the most. I judged a person who, in all honesty, I didn’t know and couldn’t have known was making errs in judgment like she did, probably because of shame.

And worse, I wanted her to feel shame because I’d like to think, that as someone who is deeply invested in justice and love and compassion, that anyone I chose as a role model would do better. But I realize as I am shaken by what is happening in her life, that she is human. A human who is sick and suffering, just like so many of us.

Most people know somewhat about Demi’s eating disorder relapse last year after breaking up with Wilmer Valderrama, and the recent release of her song “Sober”, in which she bravely admits to relapsing in the area of substance abuse, had a lot of people in her corner encouraging her to find recovery again.

Even in the recording of this song, it sounds nothing like Demi’s voice. I gave it a first listen today and the first thing I thought to myself was, she sounds so scared, so ashamed, and so broken. 

During this conversation with my friend, a fellow person in recovery from ED and other mental health issues, we both shared the possibility that maybe Demi hasn’t been truly okay for a long time. 

And that’s more than okay.

I don’t know Demi Lovato personally, but I would be kidding myself if I failed to admit that she has been an integral part of my recovery and my own resilience. Her strangely appropriative relationship with the LGBTQ+ community hasn’t always sat well with me, but she has also done something that a lot of people can’t or won’t–shown up for herself and for millions of others in the face of the darkest struggles a person can go through.

Demi Lovato embodies vulnerability and courage.

She has successfully been the representative of “its okay not to be okay” for a really long time. Even after her relapse was reported last year, that was the message that I think we all got–that it’s okay to falter and keep working on ourselves. There is so much power in being honest, but it’s imperative to always be following up on that with the people who need it. Because these attitudes and behaviors aren’t always visible to the entire world at all hours of the day. 

Some of us may not think the person doing best needs check-ups; but I can assure you, connection is the very thing that keeps recovery alive. 

Like Demi herself has said in the past: “Recovery doesn’t get a day off.”

None of us, despite whether we are one of the 65 million people who follow her on Twitter, knows Demi’s life day in and out. Since she has shown up as the face of recovery for this generation–a person who has seemingly overcome self harm, self hate, drug abuse, childhood trauma, bipolar disorder, alcoholism and an eating disorder–so many people have looked to her for inspiration and found it; myself included.

 

Dual Diagnosis Infographic.jpg

 

I remember seeing her at IZOD Center in 2014 and sobbing uncontrollably as she sat at the piano and sang “Warrior”. I cry every time I do a cover of the song myself, because so much of it is my truth. 

I, too, have had to recover from depression, crippling anxiety, abuse, codependency and an eating disorder simultaneously. I know that it often doesn’t happen all at once, and that the parts of your behaviors that aren’t “as severe” can seem like an okay thing to cling to because that’s the trade off your brain makes.

Once you are in recovery from one thing, your brain tries to sort the rest out, prioritizing your vices by which one will kill you last until they’re all no longer useful.

I liken it to playing something I call “symptomatic wack-a-mole,” because it can seem like just as you’ve got one symptom of your mental illness cared for and patched up, another one rears its ugly head.

And it’s not always as easy as “I’ve got this.” In fact, most people who can confidently say “I’ve got this” all by themselves, don’t really “got this.” Macklemore is a really good example–and one of my favorite recovery advocates to produce raw, unfiltered art on the realness of recovery.

 

At that concert four years ago, I had no way of knowing whether or not, at that exact moment, Demi was okay. Even Nick Jonas, who performed right beside her, has told media sources that sometimes he glances at her wrists when they see each other just to make sure she’s “okay.” Even then, that’s only a snapshot, a relative piece of wellbeing that makes up a recovering person’s ‘okay.’ Just like most of my family or friends and especially not strangers on the internet or even sitting around me at the concert that night had no way of knowing whether or not I was truly okay.

The best way to find out if someone is okay is to ask them. When you’re finished asking, listen. 

When you are held up and expected to represent an entire community of struggling, sometimes even broken people, self-care can be so hard. And the shame of falling from that image is even more tough to cope with. And when people depend on your success, your voice, and your triumphs to make a living, the burden only gets larger. And pretending, inauthenticity, and half-truthful recovery can only propel a person so far until those old vices start to get in line and fight for first. 

 

The one thing I was really floored by is that Demi is now (at least according to the reports) using opioids/heroin. A lot of people believe that heroin use is a dark, scary, last resort, unheard of ‘point of no return’ type of drug problem. But it’s way more common than we try to convince ourselves it is. I live on a literal island where the opioid epidemic is at its worst in our entire country. And it is grueling and scary and heartbreaking all the time.

As someone who shares a lot of struggles with Demi Lovato, I said to myself when I read this that she probably feels so powerless right now. Lexie pointed out that she felt that Demi still, to this day, despite recovery, probably feels this unstoppable desire to be perfect.

Being given the assignment of poster child for mental wellbeing is emotionally exhausting a lot of the time, and sometimes–I know from experience–this work can be counterproductive to our wellness in a lot of ways. Perfection was and likely still is the first thing I was addicted to. So many of us with eating disorders live this truth to its fullest extent.

 

tumblr_lkke0ulfHo1qzcz7jo1_r1_540.jpg

I hope that with this instance of relapse, despite how public it is becoming, we can have conversations with each other about the invisibility of illnesses like addiction and mental health (which undoubtedly go hand in hand). Awareness is great, but often not enough. We must move from awareness into action.

We cannot treat brokenness, addiction, or shame without compassion and vulnerability. I have seen some really, really awful things in the comments of the articles I’ve surveyed about Demi’s overdose in the past few hours (Looking at you, TMZ). 

This may be an opportunity for Demi to get real and even more raw with her art. Thus far, her sobriety has been a public event, so much a part of her label-created image as an ex-Disney starlet. Her powerlessness as a celebrity, and as a celebrity in recovery, is so much bigger than herself, and the stakes are high. I think the pedestal on which she has been placed is holding her back more than anything, and I hope that she can find peace and freedom on her own terms as soon as possible.

Until then, it’s on us to let her heal, check in with ourselves and our loved ones as we cope with the realities of things like addiction and disease of the mind. Demi Lovato’s words, her image, her humility and her courage have all taught me first and foremost that no matter what we believe in, we must first believe in our own worthiness. 

Get better soon, Demi. Cheering for you. xoxox

-inbetweenqueen ❤